RESEARCH, FUNDING, AND TREATMENT
AMYOTROPHIC LATERAL SCLEROSIS
[A dvanced L iver S ymptoms]
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THE TWO PRIMARY CAUSES OF DISEASE ARE;
1] Something which is needed by the body which is not there.
2] Something which is not needed in the body which is there.
John Willard, Sr., Ph. D.
A.L.S. PATIENTS HAVE TWO OPTIONS:
1] Rely on years of research and drug development [that may or may not benefit the patient]. Time is not on their side.
2] Create your own resource team and take action.
We have chosen the second option. Our research is based on patient communication, archiving research data, establishing the cause [s] of the disease, and developing a treatment protocol.
We have concluded that A.L.S. needs to be redefined and identified as liver disease. We believe the cause is attributed to blockage in the liver [Recent Hepatic Infarction]. A.L.S. should be defined as A dvanced L iver S ymptoms [pernicious anemia caused by malabsorption].
The second category would be damage to the liver due to extensive pharmaceutical medications. Clinical evidence has been presented which indicates statin [cholesterol] drugs "may be a risk factor for developing A.L.S..",- Northwestern University. www.spacedoc.net
A recent attempt to secure funding from a new foundation was again, rejected. Part of the response stated, that our non-drug approach "does not really fit into that scheme as we do primarily work with academic and pharmaceutical research groups."
It should be noted that many of the same individuals are appointed to foundation advisory boards over and over again. This leads to a very limited perspective with research and treatment. Based on clinical evidence, a Ketogenic Diet specialist should be appointed to the Advisory Board along with a Hematologist, Toxicologist, and an A.C.A.M. team.
Our response to the rejection is, as follows:
Thank you for your prompt reply. The following does not require a response.
Those of us advocating for ALS patients [we have evidence ALS is Advanced Liver Symptoms] should be non-judgemental as to whether the treatment is pharmaceutical or non-pharmaceutical. Both should be recognized based on evidence and merit. There is no time to waste with these patient's valuable lives.
THE MAIN CRITERIA SHOULD BE:
a] Does the treatment program have merit? Is there scientific data to support the claims?
b] Will the scientific data result in extension of life or a cure?
c] Is the treatment safe, or will it further compromise the liver?
There is a universe full of talented research scientists; one team does not have all of the answers. Some of the best solutions are the result of patient testing.
FROM OUR RESEARCH PROGRAM:
-Promising technology privately tested by a doctor affiliated with Johns-Hopkins and Miami Baptist. The device has the capacity to assist in healing cells throughout the body. [Quantum Physics] We donate this service to ALS patients.
-Clinicals @ U. of Hawaii, Department of Neurology indicate the same device healed brain cells [MRI images]
-Statin drugs "may be a risk factor for developing A.L.S.", Northwestern U.
-Ketogenic Diet-May prevent progression of A.L.S., Mount Sinai Hospital
-Strong evidence of Epstein Barr virus with M.S. AND A.L.S. patients [testing should be mandatory].
-Gluten sensitivity and A.L.S.-[MRI Images]-John Radcliffe Hospital, Department of Neurology, U.K.
-Hiatus and Illeocecal Valve irregularities
The "cure" or "life extension for ALS patients will be a customized approach based on evidence from reputable scientists as well as independent patient testing. Patients and families SHOULD HAVE IMPUT as to how "their money" is allocated.
A.L.S. is such a progressive and devastating diagnosis, that patients are automatically approved for disability. Ten years ago, I posted a website with a theory that I believed led to the cause of this terminal disease. The purpose of this site [although primitive] was to communicate with patients internationally and to find parallels that my lead to clinical research, a treatment protocol, and funds to assist patients for necessary treatment. www.alsalternative.com
A combination of independent patient testing and discussions with A.L.S. patients has led to a promising discovery. A.L.S. symptoms are caused by liver disease [symptoms: muscle deterioration, dehydration, anemia, malabsorption, etc.]. There are two patients in the L.A. area who fit this profile. They were diagnosed with liver disease prior to their A.L.S. diagnosis. Instead of an appropriate referral to an Endicronologist, they were referred to a Neurologist. Henceforth, the symptoms caused by liver disease, were re-categorized as A.L.S..
The condition is referred to as Recent Hepatic Infarction [liver blockage], prohibiting oxygen-rich blood flow to the liver [eventually leading to pernicious anemia]. A Fatty Liver Index Test will confirm this condition. With diminished liver function, the patient cannot absorb foods and fluids or eliminate neurotoxins. The condition is frequently missed due to the high inaccuracy rate of blood tests.
Prior to the 1990's, doctors relied on a visual examination. The symptoms that would indicate the possibility of anemia were based on rosey-cheeked pallor, examination of the mucous membranes of the mouth, severe stomach bloating [enlarged liver], easy fatigability," sore skeletal muscles may arise from insufficient oxygen to meet the work load, and the heart muscle may protest with attacks of angina pectoris due to anemia RATHER THAN to coronary sclerosis and narrowing vessels."
On the cellular level, cells survive only when toxins are appropriately eliminated from the body, and receive the appropriate amount of nutrients and hydration. If the liver is compromised, cell death is imminent. History will repeat itself with the introduction of stem cells.
Ironcally, the only pharmaceutical treatment for A.L.S., is a drug that is not to be administered to patients with a history of liver disease [Rilutek]. Many practitioners nationwide have helped us take the research in another direction. Medical documents were archived as far back as the 1940's. We have, in chronological order, medical documents to support the theory, the treatment, and most importantly, give patients some hope [at least] of extending life.
I give a lot of credit to John Foster, M.D., [deceased], for his tireless work on behalf of A.L.S. patients. He and his associate, Patricia Kane, Ph.D., co-authored a research paper, ["The Detoxx System: Detoxification of Biotoxins in Chronic Neurotoxic Syndromes." Dr. Kane developeda protocol that deserves merit. Most A.L.S. patients, however, do not have the resources for most available treatments. We have found treatment must be customized based on test results.
We are desperately looking for a high profile person or corporation that will support a homeopathic belief system and become a spokesperson for our project. We are in dire need of funding for the purpose of hiring a grant writer and A.C.A.M. physician who will assist us with this project. We are a non-profit organization.
Finally, the movie "Lorenzo's Oil", is evidence that it is not always necessary to have an extensive medical background in order to solve a medical issue. Commitment and compassion sometimes outweigh a singular approach to find answers.
ALS NORTHEAST TRUST, 501 [c] 3
26 Union Street
Newburyport, Ma. 01950
All donations are tax deductable.
DONATIONS CAN BE FORWARDED TO:
The Institution for Savings
93 State Street
Newburyport, Ma. 01950
[Payable to: ALS Northeast Trust]
TO APPLY FOR A GRANT FOR CLINICAL RESEARCH/ONSITE CLINIC
TO ACCRUE MONIES TO BE DONATED TO ALS PATIENTS TO COVER COST OF TREATMENT.
Note: We have asked the bank to give anonymity to donors. Consequently, we are thanking all donors in advance.
*We have been unsucessful with our forum on the www.alsalternative.com site. The purpose of the site was to gather information from patients as well as a "Freedom of Speech" vantage point offering and respecting everyone's opinions. We were plagued with x-rated comments as well as irrelevant postings from "Anonymous Emailers." As of this week, we were notified that the forum had to be disabled due to a very high load on the server as it was "abused by spam bots."
SEE SCALAR LINK: SCALAR TECHNOLOGY IS DONATED TO ALS PATIENTS.